Legacy in action
With Kaya Girl Legacy, partnerships are the heart of our mission. By collaborating with leading organizations, advocacy groups, and health institutions, we amplify our voice and drive real change in genetic health and rare disease awareness.
Through Kaya Girl Legacy, we believe that awareness and advocacy go hand in hand with research. Our collaboration with Save Our Cures, through fundresearch.org, is dedicated to accelerating rare disease research and promoting equitable access to innovative treatments.
Together, we work to ensure that families impacted by rare diseases like SPLIS have hope for the future. By combining the voices of patients and advocates with the strength of scientific research, this partnership amplifies the urgency of funding innovation and driving policy change.
This joint effort represents a crucial step toward a world where no family feels left behind in the search for answers and cures.
💛 Kaya’s Story Featured by Labcorp
We are deeply honored that Labcorp shared our baby Kaya’s story, a journey that reflects both the heart of our mission and the power of knowledge.
This collaboration was a full-circle moment for our family. Labcorp provided the initial genetic testing that helped us understand Kaya’s rare condition, giving us precious time to love, prepare, and advocate for her.
Through Kaya Girl Legacy, Inc., we continue her light by helping families access early genetic testing, understand their results, and find hope in awareness. 🌿
👉 Read Kaya’s full story on Labcorp.com
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