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Hi, I am Aqsa from Pakistan few years back I was diagnosed with SPLIS when I was 17 years old I started getting symptoms and after 1 and a half years I was diagnosed with SPLIS. In my case my right hand and right foot were affected very badly Thankfully I didn't get kidney issues but till now I am going through neurological issues currently I am 23 years old and only taking medications as such no other treatment I am doing 70% better now!

I am really looking forward to knowing your journey!

Navigating the Evolving Landscape of Cannabis and Cannabidiol (CBD): Understanding the Distinct Pharmacological Properties, Therapeutic Applications, Regulatory Challenges, and Public Health Implications of Cannabinoids in Medicine and Wellness

Cannabis contains a complex array of compounds, notably Tetrahydrocannabinol (THC), the primary psychoactive agent, and Cannabidiol (CBD), which is non-impairing and is increasingly explored for its potential therapeutic effects. The growing legal acceptance of hemp-derived CBD across numerous jurisdictions has led to a massive market explosion of products, though these often remain largely unregulated by bodies like the FDA, creating challenges for consumers regarding purity and accurate labeling.

Our Purpose: Build a supportive community around testimonies, shared experiences, and awareness of genetic health and rare diseases.

What you can do here:

✅ Share your testimony (personal story, challenges, victories)

✅ Ask questions about genetic health, rare disease experiences, or available resources

✅ Learn from others and exchange advice

✅ Discover Kaya Girl Legacy’s collaborations with major organizations working for advocacy and health access

Welcome to the Kaya Girl Legacy Community Group

This space is designed for connection, support, and awareness. Here, members can share testimonies, ask questions, and exchange experiences about genetic health and rare diseases such as SPLIS.

Every story matters, whether it’s living with a rare disease, navigating genetic screening, or supporting loved ones. By sharing, you not only empower yourself but also inspire and guide others who are on a similar path.

This group also showcases the partnerships Kaya Girl Legacy has built with leading organizations. Together, we amplify our advocacy, raise awareness, and create real opportunities for change in healthcare access and policies.

💛 Share your journey. Ask your questions. Let’s make an impact together.