
Why your Support Matters
Kaya Girl Legacy was founded in honor of our daughter, Kaya, whose rare disease journey inspired a mission to advance genetic health education, empower families, and strengthen collaboration between families, researchers, and healthcare professionals.
How You Can Help
Whether you choose to make a donation, become a recurring supporter, or simply share our mission, every act of generosity helps advance genetic health education and creates opportunities for families navigating rare disease.
🌿 Thank You for Believing in Kaya's Legacy
Every conversation, every educational resource, every research partnership, and every family reached is possible because people like you believe that knowledge changes everything.
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While we cannot change Kaya's story, together we can help shape a different future for families navigating genetic conditions and rare disease.
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Thank you for helping us turn love into action, grief into purpose, and advocacy into lasting change.
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Changing the future of genetic health education...
one conversation at a time
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Kaya Girl Legacy is a registered 501(c)(3) nonprofit organization. Donations are tax-deductible to the extent permitted by law.



