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Welcome to the Kaya Girl Legacy Community Group
This space is designed for connection, support, and awareness. Here, members can share testimonies, ask questions, and exchange experiences about genetic health and rare diseases such as SPLIS.
Every story matters, whether it’s living with a rare disease, navigating genetic screening, or supporting loved ones. By sharing, you not only empower yourself but also inspire and guide others who are on a similar path.
This group also showcases the partnerships Kaya Girl Legacy has built with leading organizations. Together, we amplify our advocacy, raise awareness, and create real opportunities for change in healthcare access and policies.
💛 Share your journey. Ask your questions. Let’s make an impact together.